This was just one of the many spots of needle insertion today. He was also poked in the arm, abdomen and the neck. Yeah, that one freaked me out a little.
The doctor during the EMG mentioned that Tyler is showing signs of Myotonia, or a neuromuscular condition in which the relaxation of a muscle(s) is impaired. Basically, his muscles are working all the time, even when they are suppose to be at rest. This term was also mentioned later at the Neuro appointment, along with the term Gower's sign. This relates to his lack of proximal muscle strength, especially in his lower limbs. He also must "walk" his body to stand up from a sitting or laying down position. For most of us, this is easy; second nature almost. We don't have to think about how to do it, we just do it. For Tyler, he doesn't realize what he's doing, he just does it because his body doesn't work the normal way everyone else's does. On a more positive note, he has gained 10% flexibility over the last 6 weeks with his physical therapy. :)
The next step for Tyler is a muscle biopsy scheduled for July 12. Although a relatively routine procedure, it is still a surgical procedure so there is risk involved. He will have a pre-anesthesia test sometime before the actual day to ensure his there are no complications. From now until then, the doctors will have more tests run, mostly genetic testing, keeping the Myotonia and Gower's in mind.
Please continue to keep Tyler in your prayers as we make our way through this maze of questions and answers, more questions and answers, to find an outcome that proves successful. Thanks in advance!
God Bless!
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